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Mission seeks help for 3 girls with rare blood disease

19 July 2023

 

Elaine and her daughters with Mission case officer Edwina Antonion (second from right)

Three young Filipinas are in Hong Kong with their mother right now, hoping to get tested and treated as soon as possible for a rare blood disease that has left them bleeding heavily, particularly from the nose and mouth.

Their mother, Elaine Pacheco, rushed to get them diagnosed here as soon as she learned that the nearest places with equipment for getting them tested for what is suspected to be Von Willebrand’s disease are Singapore and Hong Kong.

According to the Mayo Clinic, Von Willebrand disease is a lifelong bleeding disorder in which the patient’s blood doesn’t clot properly. Afflicted people have low levels of von Willebrand factor, a protein that helps blood clot.

PINDUTIN PARA SA DETALYE!

While it is incurable, people with this disease can lead active lives with treatment and self-care.

After the case was referred to them, the Mission for Migrant Workers immediately sent out an appeal for help for the three girls, aged 19, 17 and 10.

According to the Mission’s general manager Cynthia A. Tellez, Elaine traveled all the way from Mexico, Pampanga to get medical help for her three daughters who often bleed non-stop from their noses and gums. The two older daughters experience even heavier bleeding during their monthly period.

PINDUTIN PARA SA DETALYE

“After raising some funds Elaine brought the kids racing to get them tested in Hong Kong as she continues seeking financial help from good-hearted people,” said Tellez.

She added Elaine and her husband had to take turns working because someone had to be left at home to look after their daughters.

It was Elaine who used to work until she was diagnosed with sick sinus syndrome, a condition which causes slow or irregular heartbeats. She now wears a pacemaker, so her husband had to take on the role of breadwinner by working as a delivery driver.

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Elaine arrived in Hong Kong with her daughters on June 28, and could only stay for 14 days. But as the doctors said they needed to stay longer for a series of medical tests, the Mission stepped in to help them get visa extensions.

The girls are scheduled to undergo blood tests on Thursday, July 20, signaling the start of greater financial woes for the family. But whatever the diagnosis and cost, Elaine and her husband are determined to get their children treated, even when they’re back in the Philippines.

BASAHIN DITO

Elaine said, 'I have to be strong for my children and the only thing I want is for them to get the right treatment! I am knocking on your hearts and begging for mercy to help my children. As a mother, I just want to see them live normal and healthy lives.”

(Donations for the girls’ medical treatment can be deposited through the Alipay account of Elaine’s cousin, Janice Bautista, at 92020757. The Mission asks that each time money is sent, a photo of the deposit slip be sent via whatsapp to 91443744 for proper monitoring and accounting)

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PADALA NA!


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